We’re sharing one of our greatest assets– a list of online bone anchored hearing system forums and user groups. The communities on this list have helped so many, and they’ve helped us connect with you. With so many people looking for communities of others who can help them get answers and support, we’ve now made this list public. Better yet, we’re asking you to help us add to the list and grow it even further. Read on for access and to get the full scoop on how it works.
What is it?
A growing, living list of online forums and user groups for hearing loss conditions and bone anchored hearing solution discussions.
How do I contribute?
You can comment on the spreadsheet to let us know what changes or additions you’d suggest. We’ll implement changes and additions weekly based on your feedback. You can also comment on this blog post. Let us know what you’d like us to add to the list or change. Use it again and again If you’d like to reference this list again, bookmark this blog post. We’ll continue to update the post and the list, so you’ll always be able to see changes to current communities and new, up and coming online communities.
Finally, sharing is caring! People just like you are searching high and low for information. Share this blog post with the tool below (just click the network you’d like to share on) and help them find their support system. By sharing this post, you’re helping others get the answers that they need and see that they’re not alone.
We love hearing from you! What communities do you find most helpful? Leave your feedback in the comments below.
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Please would it be possible to add the following?
The National Deaf Children’s Society (NDCS) Facebook Page is your one stop shop for information, support & advice on ALL levels of deafness. https://www.facebook.com/NDCS.UK
It has over 20,000 likes and continues to grow. It’s mostly UK users on there but everyone is welcome to join the page and participate in discussions. You can also become an NDCS member and gain access to all our resources and information about deafness and Bone Anchored Hearing Systems.
NDCS also have a Forum, Parent Place: https://www.ndcs.org.uk/applications/discussion/
This Forum has over 4000 members and allows you stay anonymous and ask questions to other parents of deaf children and young people.
The new forum baha.freeforums.org is replacing baha-users-support.com
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I’ve had a BAHA on my left side for many years. I’ll spare you all the unnecessary details, except that I’m older now (68) and audiology department said they won’t upgrade the BAHA because my right ear has deteriorated and I’m no longer a candidate for a BAHA.
So, with that said, I want to get the abutment removed. I would like to hear from others who have done that and what, if any, problems they had after it was removed. The Dr who is going to remove it said the area around the implant may be prone to infections.
With all that said, if there’s anybody who have had the abutment removed, I would like to get your feedback on that. Thanks in advance.