Arcella Latimore lost the hearing in her left ear due to a rare condition that affected her eardrum. After years of experiencing embarrassing misunderstandings and frustration with her traditional hearing aid, she learned about Oticon Medical’s new Sentio™ System and decided with her hearing care professional that it was the right solution for her. The following is her experience, and we thank her for allowing us to share it!
My hearing journey started with this annoying thumping in my left ear. The doctor diagnosed it as an eustachian tube disorder and told me there was nothing they could do to cure it; I could only manage the discomfort. Seven years later, I went to another doctor and told him that I didn’t want to sound crazy, but it felt like my eardrum was moving. He actually listened to me and began doing several tests. He verified that it really was moving, and believed it was Tensor Tympani Syndrome (TTS). Once confirmed, he told me my options, which were either do nothing or surgery. With surgery, I ran the risk of white noise developing as a side effect. I decided that would be better than the thumping. It did happen, and also the hearing in my left ear was affected. When I plug my right ear to hear with my left, people sound like Minnie Mouse talking underwater.
I was not ready to accept I was losing my hearing, especially being in my early forties. I was still young, dating and having a social life. Yet, all I did was isolate myself because I was embarrassed to go out and not really be able to hear people. When I forced myself to go with friends, I would laugh with the group while not really knowing what I was laughing at. I was constantly acting like I heard people, but it would be awkward if they asked me a question and instead of answering, I just laughed. They would stare at me wondering why I was laughing at a serious question.
I had to finally admit that I was experiencing hearing loss, but I didn’t want a hearing aid. I convinced myself that it wasn’t really that bad. But I was isolating again, and my friends noticed. I finally went back to the doctor to get a hearing test and found out I had a significant hearing loss— around 76 percent. I decided to get traditional hearing aids, but although I wore them for a few years, they only made my hearing loss manageable, not optimal. I realized I was mishearing words or combinations of words that sounded like something else.
Once again, I convinced myself that it wasn’t bad…until I was at work one day and the supervisor asked me something. I thought they said, “Do you want another assignment?” and I very confidently answered their question but quickly realized by their reaction that was not what they’d asked me. They repeated what they’d said, which was, “Do you want another sandwich?” I embarrassedly said, “No thank you,” and walked away thinking it was time to get another hearing aid.
I went to Kaiser to update my hearing test since my last one had been two or three years ago. I told the doctor how I was mishearing words on top of not hearing well overall. The test results showed that my word recognition had gone down to 96 percent. The audiologist suggested the Sentio™ System, which she believed would improve my word recognition and overall hearing. When she mentioned surgery, all I could think was that it would be a big investment in my hearing journey. Going into my skull and implanting a device that would subsequently allow another piece to be magnetically attached to my head…wow!
However, I immediately remembered the embarrassing moment at work and knew that I never wanted to go through that again. I was further convinced because my insurance considered it surgical, so I only had to pay a small amount out of pocket. For the cost of lunch at work, I would be able to make my life so much better and enjoy my friends and family again without any awkward moments that I had to apologize for profusely later.
The doctor came to visit me before my procedure and asked if I had any questions. I said, “No. Just do a good job.” The surgery went very smoothly, and I had a nurse hold my hand the entire time. I felt very comfortable from beginning to end. My recovery went very well. The aftercare instructions were easy to follow. The left side of my head was a little swollen, but that eventually went away. I was given good aftercare instructions.
I went to my scheduled follow-up appointment, and the doctor said I was healing well and quickly, to the point I was able to get my Sentio 1 Mini processor earlier than expected. I chose black to blend well with my natural hair color. Because of the color and size, people don’t even see or notice it.
I was planning to visit my family three weeks after the Sentio surgery but was concerned about flying so soon afterwards. I was told flying would not have an impact. The clinic even provided me with a card stating I had the Sentio implant in case I set off alarms at TSA screening points. I was able to go through the airport without incident and flew with zero discomfort in my left ear.
I really like being able to use my iPhone® for wireless streaming directly into my Sentio and making volume/voice adjustments. At work, I am able to hear better in meetings with the wireless streaming. I do not miss important information, such as action items for me or my staff. I can hear everything, even quiet conversations in other cubicles. It’s amazing because I was never able to hear like this with my old hearing aids.
Sentio has improved my social life because I am no longer isolating. When I laugh it is because I really hear a joke or conversation clearly. I’m not being embarrassed by mishearing words or needing to ask someone to repeat themselves. I enjoy my time with family and friends so much more than before.
Also, Sentio has allowed me to accept that I have a disability and recognize that I have to navigate the world differently than others. This does not make me less of a person; it helps me participate more in the world around me. I appreciate my life more than before because I am more active and engaged with the people I love, and I get to experience the fun of making new friends. No more isolation and retreating from the world. Life is good!
Each person’s reasons for deciding to get the Sentio System are sacred and personal. The decision can’t be taken lightly; you must measure the costs vs. benefits. What is your quality of life? Are you fully engaged in it? If the answer is no, then Sentio will help you participate in life again and you should seriously consider it. Even if you answer yes, Sentio can take your engagement in life to another level.
I’m sharing my Sentio journey in the hope of encouraging those who have experienced similar struggles and feelings. I am an example of what life can look like on the other side. I would tell anyone considering it that it is very much worth it in the end.
Wondering whether a bone anchored hearing system in general or the Sentio System specifically might be the right choice to treat your hearing loss? Use these helpful resources, provided courtesy of Oticon Medical:
- BAHS Journey: https://bahsjourney.com/candidate/
- The Sentio System: https://sentio.oticonmedical.com/us