Tag Archives: advocacy

Doctor checking woman's ear

Meet Allison: Audiologist and Sentio System Wearer

Allison Lenear, AuD, lost her hearing due to repeated ear drum perforations. After multiple ear infections rendered her hearing aid for one ear ineffective, she decided to try Oticon Medical’s Sentio™ System. Here she shares her experience from the unique perspective as both a hearing care professional and a patient.


Early Experience with Hearing Loss Led to Early Advocacy

My hearing loss is the result of chronic ear drum perforations left after many Pressure Equalization (PE) tube placements. At the age of 15, after four failed tympanoplasties (two on each side), I was fitted with binaural hearing aids by my audiologist. He asked, “Aren’t you tired at the end of the day?” which I thought was just a teenager thing!

My hearing aids helped me hear and understand better in class, be more confident when working my afterschool job, and improved my ability to hear whispers backstage as a stage manager in my high school’s theater department. It was at that time I decided I wanted to be the person to help other people in my position accept their hearing loss and feel confident advocating for themselves. When classmates or strangers asked, “What are those things behind your ears?” I was never offended or embarrassed; it was an excellent way to start educating people around me that hearing aids are not only for older adults.

Accepting the Need to Move Beyond Traditional Hearing Aids

I graduated with my Doctor of Audiology degree from the University of Louisville in 2017 and started working as an audiologist at ENT of Athens, where I’d completed my fourth-year externship the previous year. I hadn’t had many ear infections as an adult, meaning there was no issue with traditional amplification. However, within the past two years, I started developing frequent bacterial and fungal infections, especially in the left ear. I wasn’t able to wear my hearing aid in that ear while being treated for the infection, making it difficult to hear and understand my patients. Each time I had an infection, it meant going about two weeks unaided on the affected side. It increased my stress, made the strain to hear and understand more difficult, and made me start avoiding things I love to do because it was so exhausting having to strain to hear. Because of this, I started thinking about a bone anchored solution.

Over the years, I’ve tried pretty much any new hearing aid that came out from all six major manufacturers but always ended up coming back to Oticon. I knew that for any sort of bone anchored device, especially when choosing to surgically implant it, I wanted the incredible sound quality, dependability, and reliability that I had come to rely on. So, when the Sentio™ System received FDA approval in the US, I knew I wanted to make the leap. It took some time to get it approved through the hospital, but on July 3, 2025, I became the first recipient in Athens, GA to receive the Sentio, courtesy of my physician and friend, Dr. Jacline Phillips.

Two women smiling

My only concern before surgery was that I would be the first transcutaneous bone anchored hearing system recipient in the facility I had the surgery in! I was confident in my surgeon, who had performed many bone anchored hearing surgeries (percutaneous and other manufacturers’ transcutaneous devices), but the surgical team in the operating room was unfamiliar with them. Luckily, between Dr. Phillips and our Oticon Medical Territory Manager, Dr. Dianna Tingle, everything went off without a hitch.

Undergoing the Sentio Procedure and Processor Fitting

Dr. Phillips mentioned how much easier the Sentio was to implant versus competitors’ products. My incision was much smaller than I anticipated and lined up almost exactly with where my current tympanoplasty scars were located (behind my ear).

Recovery was extremely easy. I had surgery on Thursday and went back to work on Monday. Would I recommend that for everyone? Absolutely not! The only unforeseen issue was that I wear glasses and do not have contacts. So, when I wore my headset to perform hearing evaluations, the arm of my glasses pressed against my beautifully stitched incision and caused some discomfort. I was able to utilize the free accessory included with the Sentio, the EduMic, and connect it to my hearing aid on the right side to be able to hear patients while they were in the test booth, which eliminated pressure from the headset. I continued using that system for about a week after my stitches were removed. Since that time, I have had no pain or discomfort around the surgical site—it is almost like it never happened.

The two weeks leading up to my surgery, I had a fungal infection in the left ear and was unable to wear my hearing aid. I patiently waited two-and-a-half weeks before fitting the Sentio 1 Mini processor [Note: see video snippet below taken during Allison’s fitting session]. Since I was the first to receive a Sentio in our practice, Dr. Phillips, my colleagues, the office manager, and even Dianna came for the fitting. My colleague, who I consider “my” audiologist, was out of the country for vacation and FaceTime’d into the appointment as well!

Feeling Confident with the Sentio 1 Mini

Not having worn any type of amplification for the two weeks leading up to surgery (and more than two weeks after), it was really emotional and an enormous relief to be able to hear from my left side again. Initially, the sound quality was a little different with just my Sentio on, but when I put my right hearing aid in (a pink Oticon REAL™ 1 miniRITE-T with sparkly, swirly ear mold, of course), the sound quality was essentially exactly what I was used to with binaural air conduction amplification. I was able to localize sounds and hear again!

The day after my fitting, I went on a walk with a friend, who is an audiologist, and her linguist husband through our neighborhood. She and I were walking side by side and when I realized that, even though her husband was walking behind us, I could still hear and understand what he was saying… it was unbelievable. I was also able to hear cars and bikes coming from behind, which had been a safety concern of mine in the past when walking alone. Sentio has given me the freedom and the confidence to feel safe walking alone outside. It is absolutely lifechanging.

I love Made for iPhone® (MFi) streaming! I do miss binaural streaming, which isn’t a possibility as far as I am aware, since I am wearing two different devices now (Sentio plus hearing aid). If I need/want binaural streaming, I switch to my headphones, no biggie.

I used to be so worried about infections and making sure my left ear was dry, on top of being annoyed at having something in the left ear. So, most of the time, I would take my hearing aids out when I got home from work. My sweet husband never complained, even if I was complaining that I couldn’t hear due to taking out my own hearing aids, ha-ha! Now, when I am home, the Sentio 1 Mini processor stays on and the hearing aid in my right ear doesn’t bother me, so I am more present and need him to repeat things much less frequently.

My colleagues, after having to deal with me for a solid month of infection and healing, were incredibly relieved when I was fit. An unintended benefit, since I am more aware, is that I am much less jumpy/startled less often by people outside my peripheral vision or behind me. One of my other physicians used to think it was a fun game to sneak up behind me and surprise me—but no more, Dr. Mixson! You have been defeated by the incredible Sentio technology!

Woman doing yoga

I have been pleasantly surprised by how well the processor stays firmly magnetized during walks outside in the southern heat, during Pilates, and in yoga—even when I am in crazy positions! I have only heard feedback once when in a yoga position where my arm was tucked right by my processor, but my friend next to me said she didn’t hear it at all.

I used to have a lot of anxiety and stress due to my frustration over being historically unable to understand speech in certain environments. In the short time we have been together, the Sentio System has been amazing. It makes me feel confident in those situations: being able to hear from which direction traffic noise is coming, my friends walking behind me, and in crowded restaurants—it has brought me a lot of peace. If I start to spiral at particular recommendations for Happy Hour, I must remind myself that I might not have been to that particular restaurant since I activated my Sentio, and so maybe I will do better this time. About 99 percent of the time, I am correct (some places just have terrible acoustics)!

Because the sound quality is quite different from my hearing aid, I used my audiology knowledge and figured out that, similar to cochlear implants, there may be some listening practice involved. Over a few weekends, when at home with my husband, I wore just my Sentio to let my brain adjust to the new sound. Since sound is being transmitted differently than I have experienced in the past, it’s just different! I waited two weeks after my initial fitting before making any adjustments to the settings, which is the same timeframe I request my hearing aid patients wait while trying to adjust to new sound. It has been one month (as of this writing) since my fitting and unsurprisingly, things now sound completely normal. Amazing what can happen when you follow your own advice!


NOTE: Since providing us with this user story, Dr. Lenear has joined Oticon Medical as a Clinical Specialist for New England. 

Group of smilng people

Chicago Advocates Meeting 2025

A Special Weekend with Experienced and New User Advocates

On June 7-8, 2025 in Chicago, IL, Oticon Medical held a meeting for new bone anchored hearing system (BAHS) advocates–which, along with Ponto™ wearers, included Sentio™ wearers interested in joining our advocacy program for the first time

Attending staff included representatives from Marketing, Customer Service, Insurance Support Services, and Auditory Technical Support Services (ATS), along with one of our US territory managers and our Vice-President of Global Sales and Marketing.  We were joined by Canada’s Senior Client Services and Administrative Specialist, as one of our new Ponto advocates is a Canadian citizen.

Seasoned advocate-Ambassadors Angela Sabal, Melissa Tumblin, and Katelyn Harkins joined us to provide additional coaching and support as the new advocates learned what it takes to be an advocate, including in-depth explorations of our products and technology.

The very full agenda covered the following topics:

  • Welcome and Company Overview
  • Audiology Insights: Ponto 5 Family and Sentio 1 Mini
  • Ponto and Sentio Procedures: Understanding the Differences
  • Clinical Data and Supporting Studies
  • Overview of Customer Service and ATS
  • Overview of Insurance Services Process
  • Taking Advocacy to the Next Level: Social Media, Meetups, Phone Support, and Testimonials

We also conducted a fun Jeopardy-style game with categories related to the topics covered above. Additionally, throughout the day on Saturday and Sunday, we recorded nine new user stories—five with Sentio users, three with Ponto 5 users, and one including a pre-teen Ponto and a teen Sentio wearer together. All will be released once they are ready through our YouTube channel and elsewhere, so stay tuned!

Group standing in front of shiny bean sculptureAfter the educational portion of the day was finished, we took everyone into downtown Chicago for a little free time to explore.

Group of people wavingGroup eating at restaurantThis was followed by a deep-dish pizza dinner and speedboat ride, which included watching a spectacular fireworks display over Lake Michigan.

 

 

A Heartfelt Thanks from Our Event Organizer

Our Events and Advocacy Manager for the US and Canada, Brendalys Trinidad, sent the following thank you to our attendees after the event. Her eloquent tribute effectively sums up the feelings of all OM employees privileged to have participated in this very special weekend.

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I must confess, usually after an event, I immediately send all attendees a follow-up email.  This time, it took me longer. I will be super honest with you—I just couldn’t find the right thing to say. It felt like anything I wrote just was not good enough!

I can’t express how honored I feel to have met YOU! I’m just so lucky to have the opportunity to meet such amazing people and be a little tiny part of your journey in life. I absolutely love my job and the experiences it brings me.

Girl with hearing device coloringPersonally, seeing how social Ally has become, it makes me wonder how many more sounds she’s able to hear now that she’s been implanted [with the Sentio System].  Direct sound really makes a difference. It has been amazing to witness how many people Melissa and Angela have reached with their advocacy.

 

Litle girl in pink shirtWhat incredible stories we heard about Sarah (Angela’s daughter) and my dearest friend, adorable Isla. By the simple act of love, their lives have taken an astonishing turn and opened so many more opportunities ahead.

 

Older man and older woman holding microphoneIt’s inspiring to learn how Wayne didn’t give up living in a world without sounds, and to know how much he loves hearing his kids and grandkids, and his beautiful bride, June!

 

 

Three teens sittingHow wonderful it was seeing how supportive the Jennison and McClellan families are with their kids, super-sweet Jamison and Danica.

 

 

Older woman profileOur dear Yvonne—age didn’t slow her down when it came to choosing what was best for her.

 

 

Man with long hair and beard holding microphone

 

Loved meeting young Alex, a cool, handsome musician living life to the fullest.

 

 

Learning how brave and powerful Arcella has become—she’s living her best life! Meeting the beautiful and successful Madi, who didn’t just settle for her old hearing device. Getting to know an amazing leader and advocate, Emily. It was refreshing to see young, compassionate, and dedicated Karina, who has chosen a career caring for others with hearing loss. And of course there was Pamela, shining her shiniest!

All of you provide reassurance that cute baby Paxton will be able to become anything he wants to—no limits.

Parents and smiling baby

Thanks to the love and advocacy of his parents, Paxton will do amazing things!

How can I only say thank you? It’s just not enough.

I hope you all left the weekend feeling inspired and hopeful that, together, we can continue to grow our community and open up the world of sounds to many more people!

On behalf of Oticon Medical and myself, we are committed to supporting you as a wearer of our technology. We look forward to supporting your advocacy and finding ways to educate others about solutions like the Ponto and Sentio Systems.

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Our entire Oticon Medical family thanks everyone who helped make our latest New Advocates Weekend such a success! Remember: Our stories connect us!

Want to learn more about becoming an Oticon Medical hearing advocate? Please contact Brendalys directly at [email protected].

Black woman smiling at camera

My Sentio Story | Arcella Latimore

Arcella Latimore lost the hearing in her left ear due to a rare condition that affected her eardrum.  After years of experiencing embarrassing misunderstandings and frustration with her traditional hearing aid, she learned about Oticon Medical’s new Sentio™ System and decided with her hearing care professional that it was the right solution for her. The following is her experience, and we thank her for allowing us to share it!


My hearing journey started with this annoying thumping in my left ear. The doctor diagnosed it as an eustachian tube disorder and told me there was nothing they could do to cure it; I could only manage the discomfort. Seven years later, I went to another doctor and told him that I didn’t want to sound crazy, but it felt like my eardrum was moving. He actually listened to me and began doing several tests. He verified that it really was moving, and believed it was Tensor Tympani Syndrome (TTS). Once confirmed, he told me my options, which were either do nothing or surgery. With surgery, I ran the risk of white noise developing as a side effect. I decided that would be better than the thumping. It did happen, and also the hearing in my left ear was affected. When I plug my right ear to hear with my left, people sound like Minnie Mouse talking underwater.

Diagram of ear

I was not ready to accept I was losing my hearing, especially being in my early forties. I was still young, dating and having a social life. Yet, all I did was isolate myself because I was embarrassed to go out and not really be able to hear people. When I forced myself to go with friends, I would laugh with the group while not really knowing what I was laughing at. I was constantly acting like I heard people, but it would be awkward if they asked me a question and instead of answering, I just laughed. They would stare at me wondering why I was laughing at a serious question.

I had to finally admit that I was experiencing hearing loss, but I didn’t want a hearing aid. I convinced myself that it wasn’t really that bad. But I was isolating again, and my friends noticed. I finally went back to the doctor to get a hearing test and found out I had a significant hearing loss— around 76 percent. I decided to get traditional hearing aids, but although I wore them for a few years, they only made my hearing loss manageable, not optimal. I realized I was mishearing words or combinations of words that sounded like something else.

Once again, I convinced myself that it wasn’t bad…until I was at work one day and the supervisor asked me something. I thought they said, “Do you want another assignment?” and I very confidently answered their question but quickly realized by their reaction that was not what they’d asked me. They repeated what they’d said, which was, “Do you want another sandwich?” I embarrassedly said, “No thank you,” and walked away thinking it was time to get another hearing aid.

I went to Kaiser to update my hearing test since my last one had been two or three years ago. I told the doctor how I was mishearing words on top of not hearing well overall. The test results showed that my word recognition had gone down to 96 percent. The audiologist suggested the Sentio™ System, which she believed would improve my word recognition and overall hearing. When she mentioned surgery, all I could think was that it would be a big investment in my hearing journey. Going into my skull and implanting a device that would subsequently allow another piece to be magnetically attached to my head…wow!

However, I immediately remembered the embarrassing moment at work and knew that I never wanted to go through that again. I was further convinced because my insurance considered it surgical, so I only had to pay a small amount out of pocket. For the cost of lunch at work, I would be able to make my life so much better and enjoy my friends and family again without any awkward moments that I had to apologize for profusely later.

The doctor came to visit me before my procedure and asked if I had any questions. I said, “No. Just do a good job.” The surgery went very smoothly, and I had a nurse hold my hand the entire time. I felt very comfortable from beginning to end. My recovery went very well. The aftercare instructions were easy to follow. The left side of my head was a little swollen, but that eventually went away. I was given good aftercare instructions.

Side view of head with hearing device

I went to my scheduled follow-up appointment, and the doctor said I was healing well and quickly, to the point I was able to get my Sentio 1 Mini processor earlier than expected. I chose black to blend well with my natural hair color. Because of the color and size, people don’t even see or notice it.

I was planning to visit my family three weeks after the Sentio surgery but was concerned about flying so soon afterwards. I was told flying would not have an impact. The clinic even provided me with a card stating I had the Sentio implant in case I set off alarms at TSA screening points. I was able to go through the airport without incident and flew with zero discomfort in my left ear.

I really like being able to use my iPhone® for wireless streaming directly into my Sentio and making volume/voice adjustments. At work, I am able to hear better in meetings with the wireless streaming. I do not miss important information, such as action items for me or my staff. I can hear everything, even quiet conversations in other cubicles. It’s amazing because I was never able to hear like this with my old hearing aids.

Sentio has improved my social life because I am no longer isolating. When I laugh it is because I really hear a joke or conversation clearly. I’m not being embarrassed by mishearing words or needing to ask someone to repeat themselves. I enjoy my time with family and friends so much more than before.

Also, Sentio has allowed me to accept that I have a disability and recognize that I have to navigate the world differently than others. This does not make me less of a person; it helps me participate more in the world around me. I appreciate my life more than before because I am more active and engaged with the people I love, and I get to experience the fun of making new friends. No more isolation and retreating from the world. Life is good!

Each person’s reasons for deciding to get the Sentio System are sacred and personal. The decision can’t be taken lightly; you must measure the costs vs. benefits. What is your quality of life? Are you fully engaged in it? If the answer is no, then Sentio will help you participate in life again and you should seriously consider it. Even if you answer yes, Sentio can take your engagement in life to another level.

I’m sharing my Sentio journey in the hope of encouraging those who have experienced similar struggles and feelings. I am an example of what life can look like on the other side. I would tell anyone considering it that it is very much worth it in the end.


Wondering whether a bone anchored hearing system in general or the Sentio System specifically might be the right choice to treat your hearing loss? Use these helpful resources, provided courtesy of Oticon Medical:

Using Social Media to Support Hearing Health Advocacy_5

Part 5 of 5

In Part 4 of this series, I provided tips on how to put the “social” in your social media. In this edition, the conclusion, I’ll talk about how to analyze your performance and adjust if you find you’re off-track in reaching your goals.

Analyze and adapt

All social media platforms offer statistics you can use to track the performance of each post you’re making. You’ll want to keep an eye on Engagement in particular – the number of Likes/Shares/Comments on Facebook and LinkedIn, retweets and comments on Twitter, and “regrams” and comments on Instagram. By reviewing and tracking this data you can make informed content strategy decisions based on which items performed well or not. Expect that you’ll have to periodically tweak your topics, balance of post types, post release times, and more over time as audience makeup and preferences change.

You’ll also want to keep an eye on your Reach to make sure your audience is even seeing your posts. This is especially true now that Facebook has made it all but impossible to reach your entire (or even the majority of) your Fans/Followers list without paying to boost a post. You might need to strategize and decide which posts you should boost and how much money you can afford to put behind these to reach as many people as possible. Obviously, anything boosted should include a clear call to action in support of your goal.

Nothing succeeds like success

Ultimately, you will know your online strategy is working if you attain that defined and measurable goal you set. Whether it’s an increase in donations or number of event attendees, gaining more advocates for your cause or influencing legislation, skillful utilization of social media can go a long way toward helping advocates like you achieve your goals.

Do you or a loved one need your hearing tested? Find a clinic near you now!

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Hildy Silverman is the Manager of Digital Online Marketing for Oticon Medical US. She has nearly 30 years of experience in corporate training, traditional and online marketing, and professional/technical communications for a wide array of industries, most recently at a global hearing aid manufacturer.

Using Social Media to Support Hearing Health Advocacy_4

Part 4 of 5

In Part 3 of this series, I provided suggestions on how to choose the right social media channels to maximize your digital reach. This week, in Part 4, I offer tips on how to put the “social” in your social media.

Sharing is caring

The point of social media is interaction. You want to draw visitors to your content, engage with it (and you), and ideally take an action that supports your established goal. The best way to do this is make sure whatever you share is interesting and relevant to your target audience and includes an engaging visual element (photo, .gif, or video).

Regularity is also key, so make sure you establish a content release schedule you can manage consistently. This rewards audience loyalty to your properties, which in turn allows you compete against all the other social outlets vying for their attention. Examples of good schedules include one post on Facebook or three-five daily tweets on Twitter per day. Remember, you can utilize a content management platform like HootSuite to schedule posts/tweets in advance so that you aren’t overwhelmed by a frequent need to post. Even without one of these platforms, you can schedule ahead on Facebook from the platform itself.

Don’t forget the hashtags

Make sure you learn how to use hashtags on all your platforms – they’re not just for Twitter anymore! “Ride” popular hashtags related to your cause so that more of your potential audience can discover your content. Using single-sided deafness (SSD) as our model cause again, you could include #deaf, #hearingloss, or #hoh regularly with your posts, which makes them show up when someone performs one of these common searches for content. Additionally, if you see a hashtag is trending that relates to your cause (e.g., #WorldHearingDay) you could include it in a post linking SSD to the importance of getting your hearing checked. Just make sure you don’t go crazy with the hashtags – using too many in relation to the amount of content provided in a post has been shown to reduce engagement.

One more post to go in this series! In my next post, I’ll provide an overview on how to analyze the results of your online efforts and tweak them to achieve your goals.

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Hildy Silverman is the Manager of Digital Online Marketing for Oticon Medical US. She has nearly 30 years of experience in corporate training, traditional and online marketing, and professional/technical communications for a wide array of industries, most recently at a global hearing aid manufacturer.

Using Social Media to Support Hearing Health Advocacy_3

Part 3 of 5

In Part 2 of this series launched last week, I provided suggestions on how to set S.M.A.R.T. goals for your online activities. This week, in Part 3, I’m going to take you through how to choose the right social media channels to maximize your digital reach.

Choose the right channels

I recommend setting up a “home base” online first — a website if you have a larger organization with multiple goals or a blog page if your organization is small or a solo effort. WordPress and Wix are two examples of free, user-friendly site builders available to help you establish a basic web presence. Your site or blog will provide a source of regular content to share through your social media properties. It will also give you a central location to which you can drive online visitors and get them to take an action (e.g., donate, learn more, sign up for emails and events, etc.), which you will need for tracking purposes.

Research your target audiences and where they tend to gather online to assess which social media platforms will best support your efforts. Focus on developing one or two properties first. Most activists and advocates start with Facebook and Twitter, but platforms like Instagram, Pinterest, and Snapchat can be quite effective as well.

A YouTube channel is a powerful tool, as videos increase engagement with social posts. They can be shared from your channel by friend, fans, and followers through every social media platform, and are the content likeliest to go viral. However, you (or someone in your organization) obviously needs the expertise and time to create them.

LinkedIn tends to draw a more career-focused, professional audience, which may or may not suit your goals. Reddit gets tremendous traffic, but many find it complicated, riddled with trolls, and too much of an attention drain to manage. Tumblr is popular, especially with younger audiences (tweens, teens, and 20-somethings primarily) — depending on your goal, that audience might be worth your effort to cultivate but go in knowing that it is a constantly updating outlet. Plus, you’ll be competing with extremely active fandoms and similar lighthearted content for attention.

Managing multiple social properties

If you do reach a point where you want to utilize multiple platforms, it’s a good idea to learn a social media management tool (a couple tried-and-true options offering free basic versions include HootSuite and TweetDeck). These allow you to schedule multiple posts across platforms even in advance, plus they let you monitor comments and messages, so you can interact with your audiences in a timely and consistent fashion. If you’re willing to invest in upgraded versions, you can use them to track valuable performance statistics like audience engagement all in one spot.

Hope this information is helpful! In my next post, I’ll provide tips on how to put the “social” in your social media.

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Hildy Silverman is the Manager of Digital Online Marketing for Oticon Medical US. She has nearly 30 years of experience in corporate training, traditional and online marketing, and professional/technical communications for a wide array of industries, most recently at a global hearing aid manufacturer.

Advocacy leads Kim Russell to find the right hearing solution for her single-sided deafness

Kim Russell

At 10 years old, Kim Russell was diagnosed with a chronic ear infection that could not be helped with antibiotics. She underwent a mastoidectomy to remove the infection, resulting in permanent hearing loss in her left ear. Her mother, having had the same issue when she was younger, also lost her hearing and therefore single-sided deafness (SSD) was a normal part of life in her family.

“School, work and social situations were hard, and the options were not as robust as they are now,” Kim said.

Kim became accustomed to living life with one good ear and didn’t receive intervention or aid until she was 25. Her job had hearing aid coverage and she looked into what options were available for her hearing loss. She discovered BiCROS hearing aids and wore them for 30 years. Although the hearing aids helped, no solution is perfect. Crowds were still difficult and loud places like bowling alleys and restaurants made it impossible to hear people speaking and know where sound was coming from. Her audiologist had never mentioned any other options, so she believed BiCROS was the only type of hearing loss solution available to her.

A chance encounter with a bone anchored hearing system

Kim stumbled upon a bone-anchored hearing system (BAHS) on Facebook when a friend happened to post a video at the right time. “One day on Facebook, a friend of mine who is a nurse posted a video on her Facebook page and normally it wouldn’t be anything I would pay attention to. It was something about a surgeon performing a surgery for the first time in West Michigan. They were doing a MIPS procedure (Minimally Invasive Ponto Surgery). He’s the only MIPS surgeon in this part of Michigan and they mentioned single-sided deafness. I did some research and realized this was for people like me!”

Kim searched for the name of the doctor’s office online and learned it was located in the building next door to her dentist. She scheduled an appointment, and learned she was a great candidate for the Ponto System. After trialing a Ponto BAHS on a softband for a week she had the MIPS surgery in July of 2018 and received a Ponto 3 SuperPower. “It was easier than a dental procedure. I was in, out, dressed and drinking coffee in about 58 minutes,” she said.

A new world of sound emerges with the Ponto 3 SuperPower

After Kim’s MIPS procedure and Ponto 3 SuperPower activation a new world of friends, advocacy, and interaction opened up to her.

“For the first time since getting my Ponto, I went for a walk with a friend. I’ve always kept people on my good ear (right side) so we put her on my left to see what would happen. I about jumped out of my skin. Her voice was clear and crisp, even with the radio blaring in the background.

The sound quality from trying the Ponto on a softband vs. an abutment is so much better, so crisp. I call it ‘organic’,” she explained.

As Kim has learned more about Ponto and become more involved in the hearing loss community, she has learned just how important advocacy is. “How did I go so long being hearing impaired and not knowing there were other options? This BAHA World Hearing Facebook group was where I received most of my education. It’s important for people to look into all of their options, and do their research.”

Kim’s advocacy and education came full circle last year after she attended Oticon Medical’s yearly advocacy conference. She met fellow Ponto users and collaborated with Oticon Medical staff.

“Before, I had never told anyone I wore any kind of hearing aid. This time, as soon as I got my abutment I shared it on Facebook because it’s important to get the word out. Knowing what was available made a difference in my life. Every now and then I notice the crispness of something I haven’t heard before. I hope advocacy and sharing my story can do the same for someone else.”

Find a clinic

Click the button if you want to learn more about our Ponto bone anchored hearing systems or arrange a trial.

Using Social Media to Support Hearing Health Advocacy_2

Part 2 of 5

In Part 1 of this series launched last week, I provided suggestions on what to consider before establishing your online presence. This week, in Part 2, I’m going to guide you through how to define the goals you hope to reach by taking your advocacy online.

Be S.M.A.R.T.

Continuing with single-sided deafness (SSD) advocacy as an example cause, let’s say you start with a goal of, “To raise awareness of single-sided deafness”. That’s a fine start, but you should further define what you hope to achieve online in order to track your progress and results. Most social media professionals utilize the S.M.A.R.T. method to establish clear and attainable goals. Let’s look at how this works by using this method to refine our sample goal:

  • Specific. The more precisely defined, the better. If you’re defining an online presence, here are some examples to help you set specific goals:
    • Who — do you want to reach by taking your advocacy online?
    • What — do you intend to accomplish for your cause?
    • When — what milestones do you want to reach on your way to the goal?
    • Where — do you want your online reach to extend (local, countrywide, global)?
    • Why — are you choosing to expand your advocacy to include online efforts?
    • How — are you going to use social media to achieve your goal?

This leads to a clearer, more precisely defined goal, e.g., “To raise public awareness in the U.S. of the issues affecting those living with single-sided deafness in order to increase donations this year.”

 

  • Measurable. How do you know if you’ve increased donations? Set a measurement, such as, “Double the number of donations received over last year.”
  • Attainable. Look closely at that number and make sure it’s achievable. It’s usually wise to start smaller and then build over time. In this case, perhaps something more attainable would be, “Increase donations by 10 percent over last year.”
  • Relevant. Consider whether social media provides an opportunity you wouldn’t have otherwise. If so, then ask yourself, “How?” Adjust your goal to focus on what you plan to achieve using tools uniquely available online, such as, “Increase donations by 10 percent this year by driving Friends/Fans/Followers to GoFundMe campaign.”
  • Time-based. Goals bound by specific timeframes are easier to track and attain. Rather than a vague “this year”, try, “Increase donations by 1-2 percent each month in 2019 by driving online audiences to GoFundMe campaign, with year-end goal of increasing overall donations by 10 percent.”

Still with me? Great! In my next post, I’ll discuss how to choose the best social media channels for your advocacy outreach.

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Hildy Silverman is the Manager of Digital Online Marketing for Oticon Medical US. She has nearly 30 years of experience in corporate training, traditional and online marketing, and professional/technical communications for a wide array of industries, most recently at a global hearing aid manufacturer.

Using Social Media to Support Hearing Health Advocacy_1

Part 1 of 5

Everyone here at Oticon Medical is so impressed by the advocacy efforts we see online in support of the deaf and hard-of-hearing. Whether the focus is on raising awareness of related health conditions or the benefits of bone-anchored hearing systems, social media has made sharing information and events easy, immediate, and far-reaching. But how do you develop an effective social media presence and then track whether it is helping you attain your goals as an advocate?

Over the next few weeks, I’d like to provide you with tips to help you define (or refine) an effective social media strategy in support of your generous efforts. Let’s begin at the beginning — establishing your online presence.

Set yourself up for success

Before you do anything else, think about what you can offer an online audience with your advocacy.  For example, do you have personal experience with a specific health condition?

Let’s say your cause is single-sided deafness (SSD) — perhaps you have it yourself or have a child who does. Maybe you are an audiologist or lobby on behalf of those with SSD. Whatever personal and/or professional experience you have to offer, evaluate how to best express your knowledge and expertise in your social media profile so visitors to your online property will feel confident that you know what you’re talking about.

Will going online enhance your “live” efforts?

In parallel, consider why you want to take your efforts online. Developing and maintaining an effective online presence will take significant time and effort, so you want to make it worth your while. Ask yourself what you hope to accomplish that you can’t achieve through your real-world efforts alone.

Continuing to use SSD as our example cause, here are some things you want to consider:

  • Will you significantly increase your ability to reach your target audience (e.g., affected communities, other advocates) by moving some of your efforts online?
  • Will social media shares and promotion increase the general public’s awareness of the impact of SSD and understanding of those living with it?
  • Might online platforms help you raise more money for SSD research or donations in support of people who don’t have insurance coverage and can’t afford a BAHS?
  • Will promoting events like marches, meet-ups, and similar activities online improve your ability to organize them, and increase attendance beyond what you’ve experienced using traditional mailings, flyers, and word-of-mouth alone?

If the answer to one or more of these is “yes” then it’s time to move forward with establishing your online presence. In the next post in this series, I’ll guide you through how to establish “S.M.A.R.T.” goals for your social media campaigns.

Questions? Please ask yours in the comments!

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Hildy Silverman is the Manager of Digital Online Marketing for Oticon Medical US. She has nearly 30 years of experience in corporate training, traditional and online marketing, and professional/technical communications for a wide array of industries, most recently at a global hearing aid manufacturer.

Ear Community goes to Washington with Ponto SuperPowers

Advocacy Day 2019

On February 26, Ear Community was invited to be a part of the 2019 Advocacy Day on Capitol Hill.  This annual event invites advocates on behalf of dental, oral, and craniofacial research to speak directly with federal policymakers about how insurance coverage and research funding would improve the lives of those living with these conditions.

Organizer Melissa Tumblin founded Ear Community and has a daughter, Ally, with Microtia and Atresia who wears a bone-anchored hearing system (BAHS). Melissa was able to arrange the meetings with House and Senate representatives because she sits on the Patient Advocacy Council for the National Institute of Dental and Craniofacial Research (NIDCR).

Melissa and Ally were accompanied by eight other Ear Community families, including one medical doctor, to Washington, D.C. representing the states of Washington, Colorado, Tennessee, Maryland, and Virginia.

Lobbying on behalf of families living with hearing loss and related conditions

On Monday, February 25, Melissa met with directors from the National Institute of Health representing the NIDCR, American Association for Dental Research (AADR), and International Association for Dental Research (IADR) to discuss collaborative efforts regarding children and adults affected by craniofacial challenges due to Microtia and Atresia and Goldenhar Syndrome.

The next day, the Ear Community families met with the following representatives and staff members on Capitol Hill:

  • Staff members for Senator Lamar Alexander’s (R-TN) office
  • Legislative staff members for Congressman Joe Neguse’s (D-CO), Senator Cory Gardner’s (R-CO), and Michael Bennet’s (D-CO) offices.
  • Legislative staff members for Senator Chris Van Hollen (D-MD), and office staff for Congressman John Sarbanes’ (D-MD) and Senator Ben Cardin’s (D-MD).
  • Legislative staff and the press secretary for Congressman Denny Heck’s (D-WA) office and an Appropriations representative for the NIH staff for Senator Patty Murray’s (D-WA) office.
  • Senator Tim Kaine (D-VA), Congresswoman Abigail Spanberger (D-VA), and legislative staff members for Senator Mark Warner (D-VA) and Congressman Ben Cline (R-VA). Sen. Kaine was celebrating his birthday and signed a little girl with Microtia and Atresia named Mazie’s cast. Both Sen. Kaine and Rep. Spanberger tweeted about the Ear Community visit.

Sen. Mark Werner and Ear Community FamiliesRep. Spanberger with members of Ear Community

Melissa also scheduled phone meetings with Congressman David McKinley (R-WV) and Congressman Michael Thompson (D-CA), as they both serve as co-chairs of the Congressional Hearing Health Caucus. Rep. McKinley is a cochlear implant user, and his grandson wears a bone-anchored hearing aid.

Each family left behind a detailed packet of information with the story of the Ear Community organization, an explanation about the need to wear bone-anchored hearing systems, and a sample of anaudiogram along with other helpful facts and figures. Each family explained to legislators and their staff that a bone-anchored device is their only option, because they don’t have the same hearing challenges that qualify others to wear cochlear implants or benefit from traditional hearing aids. Therefore, wearers need lawmakers to work toward mandating bone-conduction hearing device coverage by insurers nationwide. Otherwise, insurance companies are effectively discriminating against thousands of children and adults with hearing loss by not covering these medical devices.

A Stranger Things star gives back

Gaten Matarazzo poses with Ear Community kids for Advocacy Day 2019.

The Ear Community families also received an exciting treat: thanks to the NIDCR and AADR, they were given the opportunity to meet actor Gaten Matarazzo from the hit TV show Stranger Things! He was part of the Advocacy Day non-profit organization lobbying to bring awareness to Cleidocranial dysplasia (CCD), a rare genetic mutation affecting the growth and development of teeth and bones.

Melissa expressed her appreciation to Oticon Medical for lending her two Ponto 3 SuperPower BAHS on soft bands. During her visits, representatives tried on the Pontos and listened to her talk during their meetings, so they could experience for themselves what it’s like to hear through bone-anchored devices.

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Ear Community hosts a series of picnics where Microtia and Atresia families can learn more about Oticon Medical’s Ponto 3 SuperPower. Please click through this link for the 2019 picnic schedule.

Ready to try your first Ponto BAHS or upgrade to our latest model? Click below to get in touch with an audiologist in your area who can help you choose the best option for your hearing needs.

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