Camilla Gilbert has faced many obstacles in life, including bilateral microtia/atresia with hearing loss and other challenges. Yet nothing has deterred her from helping others and advancing her education. Now she is doing it all with support from her Ponto™ 5 SuperPower bone anchored hearing devices.
I had heard about many people with Ponto 5 SuperPower devices and wanted to try them. I heard that it was terrific regarding the sound quality, power, and feedback reduction.
Before I went back to school for my Masters in Social Work (MSW), I went to school to learn about Deaf culture and history, and ASL. What motivated me to return to school was to become a role model for myself, my daughter, and the communities I knew I would serve one day. I want to help and support people who feel like there is no hope in the Deaf/hard of hearing communities and the disabled community. I am currently pursuing my Doctor of Education degree in Educational Leadership.
My experience wearing a Ponto to school as an adult compared to going to a school as a kid without treatment is different. I’m able to understand more clearly. I can not only hear the professors, but participate in dialogue with my classmates.
Wearing the Ponto 5 SuperPower is also helping me achieve my goals as an employee, since I’m very new to my position. I can hear my colleagues whispering in their office with the door closed. Maybe we have thin walls, but before this new Ponto 5 SuperPower, I could not hear the whispering!
With Ponto 5 SP, I can communicate in a social situations, such as at a restaurant, in meetings, and at various appointments. Before, I struggled with understanding what people were saying in social situations. Now I can engage more without listening fatigue.
My hearing journey hasn’t been easy. However, this journey is who I am and will always be. Life is what you make out of it, so we must embrace our differences, weirdness, disabilities, and technology. Without technologies from Oticon Medical, which believes that SoundMatters, I wouldn’t understand hearing health’s quality and importance. If you are at a crossroads in your hearing journey, I suggest you do your research about Ponto 5 SuperPower.
Ross Wiseman, pastor and avid hiker, struggled to engage with his congregation and enjoy his leisure time after losing his hearing in one ear suddenly. Treating his hearing loss with a Ponto™ bone anchored hearing system was a life-changing experience. Recently, Ross upgraded to the Ponto 5 SuperPower, and in this new testimonial video, shares how much he loves this next-gen technology.
The hair cells of my auditory nerves died over a weekend. Friday night, I felt like my ear was stuffed up. Didn’t feel sick at all. Saturday morning I was fine. Was coaching soccer later that day and it happened again. By evening I was fine. Sunday morning, I preached, went home, and took a nap. When I woke up, I couldn’t hear anymore. I thought maybe I was getting a cold or had an ear infection. I called the ENT. When that visit ended, he told me that I was permanently deaf in my left ear. They scheduled a CAT scan to see if I had a tumor. I did not; it was single-sided deafness (SSD) with no explanation.
For over 10 years I lived unaided and was miserable. I couldn’t hear my wife on dates when we would eat out, or when we hiked. She hikes in front of me and when she would speak it was useless to try and communicate. I struggled to enjoy watching tv with my kids or hear at events like ball games. Teaching would make me sick to my stomach as I had to turn my head back and forth to try and hear everyone at the table or in the room). I would often sit with others and just smile because I was lost by the conversations that were going around me. I never could tell what anyone was saying, so it created a disconnect.
When I got my first Ponto, we had our church’s tenth anniversary party. I had so many people come to me who had been with me before I went deaf and say it felt good to have their pastor back. I was out in the open talking to everyone rather than in a corner with one person talking. I was also smiling a lot because I was engaged. I didn’t realize that, during those noisy events, I used to zone out and my face showed it. My Ponto changed everything!
If your audiologist doesn’t use Oticon Medical devices, demand that they reach out to Oticon Medical or find an audiologist who will. I was my doctor’s first Ponto user and implant surgery. Oticon Medical was amazing in sending them a product representative, and when it was time, a surgical rep to explain minimally invasive Ponto surgery (MIPS). Now the majority of their patients who need a bone anchored option go with a Ponto.
Katelyn Harkins tells us how getting fit bilaterally with Ponto 5™ SuperPower processors have helped her eight-year-old daughter Isla blossom socially.
Isla was born with bilateral microtia/atresia. She was adopted from China at 20 months old and had no access to sound prior to coming home. She received Ponto bone anchored hearing processors on a softband as loaners from Oticon Medical the month she turned two and loved them immediately. She even insisted on wearing them to nap!
We are privileged enough to have access to excellent hearing solutions from Oticon Medical, which give Isla a near normal audiogram. We are also lucky to have a school for the Deaf nearby, which gives Isla access to education provided in both spoken English and American Sign Language (ASL).
We were very excited to hear OM was coming out with a Ponto 5 SuperPower! Isla’s hearing loss is severe enough that the extra headroom of the SuperPower allows for access to as much sound as possible, and equally little feedback. Isla was thrilled that the upgrade gave her onboard controls for volume and mute.
Isla’s upgrade included getting bilaterally implanted*. In researching implantation, I understood minimally invasive Ponto surgery (MIPS) was minimally invasive compared to the old “long cut” or “pocket” methods: one hole punched in the skin, one hole drilled and filled with a tiny screw. I brought my research to the Children’s Hospital of Philadelphia (CHOP) ENT and Isla was his first MIPS surgery. He expressed that he loved the process and was very impressed with the how easily it went. In this video, (Isla was still waiting six months to “snap on” her processors because her skull bones are thin).
The Ponto 5 SPs are amazing! My daughter has loved her devices from the beginning, and we always made them fun by having a bunch of different colored softbands to choose from each morning. She has absolutely blossomed in public and more crowded situations with the upgrade to P5 SPs. She’s more willing to get out there and play or join a group of kids she doesn’t know. Absolutely worth it!
* Ponto surgery is contraindicated for patients under 5 years of age. The subject here is shown wearing two ponto 5 superpowers on a softband but has undergone the surgery stated by the parent. Outcomes and healing times wary patient to patient. Please consult your caregiver.
Longtime Oticon Medical advocates Georgene and Lucy Brown befriended Liz and Emma Kate Greene, which led to Emma Kate getting a Ponto™ bone anchored hearing system (BAHS) to treat her single-sided deafness (SSD). Now Liz shares her family’s journey toward finding the right solution and the vital roles Georgene and Lucy played in making their decision.
Emma Kate has single-sided deafness due to conductive hearing loss. This is secondary to otosclerosis, which was first diagnosed in kindergarten, but we suspect occurred in 4K as we had quite a bit of difficulty that year following directions. Her teachers actually thought she was autistic because she had difficulty interacting at school, but we had no difficulty at home. We suspect this was because there was less background noise and because her dad and I both have strong (loud) voices.
She initially used a behind-the-ear regular hearing aid. She told us that this did not improve her hearing almost at all and we had a lot of difficulty getting her to wear the device. She also had difficulty being active as her device would frequently fall off and get lost.
Discovering bone conduction as a treatment option
We were first introduced to the idea of a bone anchored hearing device by our ENT when Emma Kate was 10 but he told us this wouldn’t be an option until she was older for implant. He did not offer the option of wearing a device on a softband. He also dealt exclusively with another manufacturer and therefore Ponto was not offered as an option. Once we were introduced to the idea of bone anchored devices, I did a lot of research into available devices along with the pros and cons of each, which lead us to a new ENT who was able to work with Oticon Medical devices.
As part of my research, I joined several social media groups geared towards bone anchored devices for both adults and children. In asking questions in these groups I was frequently referred to Georgene Brown, as our daughters are close in age and both active. She was incredibly friendly and informative when I reached out and has always been willing to spend time discussing her vast knowledge regarding bone anchored devices.
I think that all preteens, especially preteen girls, want to feel like they fit in. Any difference is upsetting, particularly when you feel that you’re the only one dealing with an issue. Emma Kate’s friendship with Lucy Brown has helped her feel that someone else understands the challenges that she has from being hearing impaired and also the fears that come with requiring surgery, how to fit in at school, etc. It has been incredibly beneficial to Emma Kate to be able to talk to someone who has lived through these experiences and is thriving despite hearing loss.
The next step: minimally invasive implantation surgery
Emma Kate’s abutment placement was incredibly smooth. We had a same-day procedure. She recovered from anesthesia without difficulty and was playing her guitar about two hours after we left the hospital. We had no difficulty with healing or infections. We were able to activate her Ponto about six weeks after her procedure. The most difficult part was not using her Ponto during that time at school.
Emma Kate says that since having her abutment implanted, she can hear better and that it is much more comfortable to wear her Ponto as opposed to when she was wearing the softband.* She also states that she was embarrassed for people to see the softband but feels that her Ponto is now much more discreet. She is able to be active without her Ponto moving but states that her softband would slip out of place sometimes when moving between classes at school.
The benefits of Ponto 5 Mini
Now, having the new Ponto 5 Mini makes Emma Kate’s life even easier. We first noticed an improvement when Emma Kate began wearing a Ponto on a softband However, the benefits have increased since her MIPS procedure. At home, she is able to engage more at dinner or in conversations.
At school, Emma Kate uses an EduMic™ to stream her teachers’ voices directly to her Ponto. Particularly in middle school where she has multiple teachers, some of whom are very soft-spoken or teach from the back of the room, this has been incredibly helpful. Again, this is particularly helpful during the pandemic, as many teachers are wearing masks. We have seen an improvement in her grades from consistent B’s and C’s to A’s and B’s.
She also has found significant improvement in everyday activities. She loves to play guitar and listen to music. Her Ponto has significantly improved her ability to follow music while playing her guitar and to watch TV or listen to music without the whole house hearing what she’s watching. She loves the ability to stream music directly to her Ponto, especially on road trips.
Emma Kate would say her greatest improvement is socially. She is much more confident engaging in conversations since she is not frequently having to ask her friends to repeat themselves. And this is particularly helpful in settings with background noise, such as restaurants, parties, and the cafeteria at school.
The Ponto 5 Mini’s small size, as well as the lack of feedback (due to the OpenSound Optimizer™ feature) when worn under her thick, long hair were both critical in our decision-making when comparing devices initially. She also uses the Bluetooth® capability almost daily. We have not yet used a remote appointment (via the RemoteCare™ feature) with our audiologist but have discussed that this is possible in the future.
What parents considering a BAHS for their child should know
I want someone considering getting a bone anchored hearing device to know that there are options. Frequently, only one popular brand’s products are presented but there are other companies, such as Oticon Medical, that have incredible products as well as unparalleled support. When I initially reached out to Oticon Medical to get information prior to deciding to pursue a Ponto, I was immediately connected with a local representative who was present at Emma Kate‘s activation appointment and has been invaluable throughout this process. She is constantly willing to help me adjust settings as well as obtain necessities, such as an extra case or support for school.
I would also want them to know that there may be insurance challenges. However, our ENT and Oticon Medical have been incredibly helpful in working through these.
Lastly, and perhaps most importantly, I want them to know that they are not alone. There are multiple support groups available online through social media that can help connect to other parents as well as young adult and adult patients who are using bone anchored hearing devices in their everyday lives. These individuals are always more than willing and gracious to answer questions, provide experiences, and to just listen to the frustrations and fears that unavoidably come with having a child with hearing loss. We have found this community, particularly Georgene and her family, to be our biggest cheerleaders through this process. They have helped alleviate Emma Kate’s fears, as well as our concerns, while having our daughter go through a surgical procedure, healing, and ultimately making life-changing decisions. We are so thankful we found Oticon Medical because even in the short time that we have been using Emma Kate’s Ponto we have seen vast benefits.
Ready to try a Ponto bone anchored hearing system? Find a clinic near you!
* NOTE: Implantation is contraindicated for children below the age of 5 years.
Audiologist Laura Rhee’s Insights on Fitting Children with Ponto Systems
We had the wonderful pleasure of talking with lead pediatric audiologist, Dr. Laura Rhee from Providence Speech and Hearing Center and CHOC of California, about her experience fitting Oticon Medical Ponto Systems.
Why do you choose to work with Oticon Medical’s Ponto family of bone conduction devices?
Dr. Rhee: “I recommend Oticon Medical bone conduction devices over other manufacturers because your devices tend to have far less feedback issues. I make very few adjustments during the fitting due to the lack of feedback. This gives my patients more access to sound without the annoyance of feedback or reduction in speech understanding.”
What do you like about the Oticon Medical Ponto fittings?
Dr. Rhee: “I really like how easy the Ponto devices are to fit. Typically, I don’t have to make many adjustments to programming. At my clinic, we pre-program sound processors to make fittings go smoothly. We counsel families about daily use, how to clean and handle the sound processor and accessories during a demonstration or consultation appointment. Pre-programming the sound processors frees up time for us to spend counseling the families, improving our clinical efficiency, and providing valuable information to the family without being rushed.”
What are some challenges you or your patients face with Oticon Medical Ponto fittings?
Dr. Rhee: “The hardest part of a new fitting is the softband. It’s important to have it (the softband) tight enough to get a good fitting but this can become uncomfortable or may need to be adjusted throughout the day. Very young children will often grab and pull the band off throughout the day requiring parents or caregivers to replace and reposition often I tell parents it’s important to maintain a consistent wearing schedule each day because it will help children adapt to the softband and provide consistent access to sound, which is crucial for developing language”.
What advice do you give parents that are just starting this journey with their child?
Dr. Rhee: “Use the processor all waking hours to stimulate auditory connections within the brain. If you don’t use the auditory nerve or pathway, your brain will reuse those neural connections for other senses. Keep your brain working using the processor consistently to help reduce listening fatigue and foster speech development.”
Final thoughts on reducing feedback in bone conduction hearing devices
One of the key takeaways from our discussion was the importance of reducing feedback (aka ‘whistling’ or ‘whining’ noise) that occurs when amplified sound is reflected from the head, reaches the microphone, and is re-amplified. If feedback is not eliminated by an anti-feedback system, it becomes audible to the user and others around them. With Oticon Medical’s OpenSound Optimizer™ (OSO), you aren’t compromising gain or volume due to feedback. This is especially important when working with pediatric patients, who are often in a car seat, highchair, or lying on their backs during playtime. And Oticon Medical’s OpenSound Optimizer does just that—prevents feedback and provides stable gain so that users can get the most out of their devices without compromising speech understanding.
Helpful links for parents of Ponto wearers
Here are some links that may be helpful for parents who are in the process of getting their child an Oticon Medical bone anchored hearing system (BAHS) or families of children that are new to wearing a Ponto BAHS processor.
Dr. Rhee obtained her audiology degree from San Diego State University and University of California San Diego and has been at Providence since 2014. She works with a wide variety of pediatric patients (zero to 21), including children with craniofacial disorders. She has treated children with atresia, Treacher Collins and other syndromes related to hearing loss.