Tag Archives: connection

2014 Ear Community Microtia and Atresia Summer Family Picnics

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Each summer the Ear Community hosts picnics around the world that help bring Microtia and Atresia families together. The picnics offer a platform for the community to come together and share experiences. Medical professionals– Microtia and Atresia repair surgeons, ENTs, audiologists and therapists– also join to share information on the options for living with hearing loss. Families are even able to test the latest hearing products at the event.

As a sponsor and active participant in the picnics, we can’t think of a better way to spend a summer day.

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Here’s when and where this summer’s picnics will take place:

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A Ponto Advocate Adventure to Remember

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When Ponto users come together amazing things happen. This year, as a thank you to a group of advocates, one of those amazing things included visiting The San Diego Safari Park. The park is home to wild and endangered animals from Africa, Asia, Europe, North and South America and Australia. We even got to meet a handful of the animals up close!

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Thank you again to those who have shared your experiences throughout the year. Your stories continue to help people in their own personal journeys. We’re looking forward to meeting more of you and continuing to bring the community together in as many ways as possible.

Do you have an experience to share? Let us know here or in the comments section below. And, you can always connect with Ponto users on the Oticon Medical Facebook Page and Twitter.

Resources: Support through User Groups, Organizations and More

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It can be hard to find helpful information from people who fully understand the impact of dealing with hearing issues. Here’s a list of resources that we update on a regular basis. In addition to the resources below, you can also connect with others on our networks: Facebook, Twitter and Pinterest. And, if you’re looking to talk to someone specific to your condition, we can help connect you.

The benefits of bone anchored hearing systems vary greatly from person to person due to differences in hearing loss as well as listening preferences and lifestyle. A good way to gain insight into what life might be like with Ponto or another type of system is to talk to other users. Below are some useful links for getting connected to user organizations.

AllDeaf Forum

Bone anchored hearing systems:
Facebook – BAHA User Groups:
BAHA – Bone Anchored Hearing Aids
BAHA users Welcome!
BAHA-Bone-Anchored Hearing Aid
BAHA Support Group (Southern Africa)

Acoustic neuroma & single-sided deafness (SSD):
Acoustic Neuroma Association
US organization for people with acoustic neuroma and other benign tumors of the cranial nerves

British Acoustic Neuroma Association (Bana UK)
A support charity for those with Acoustic Neuroma

Acoustic Neuroma Association of Canada (ANAC)
The Acoustic Neuroma Association of Canada is a patient-headed, peer support group.

Facebook – Various SSD User Groups:
Deaf in One Ear? Yes.

Atresia, Microtia, Treacher Collins and Goldenhar Syndrome:

Ear Community
The Ear Community is a warm and supportive community for those who have any or all of the following: varying degrees of hearing loss, Microtia, Atresia, Treacher Collins or Goldenhar Syndrome.

Facebook – Various Microtia & Atresia User Groups:
Microtia Mingle UK
Microtia
Microtia
Teens/adults with microtia

Goldenhar
A support charity for families and individuals affected by Goldenhar syndrome and related issues.

Treacher Collins
A support charity for families and individuals affected by Treacher Collins Syndrome.

Yahoo online discussion support group
This community is intended as a forum for people with, and parents of children with Aural Atresia and/or Microtia.

This is an ever-growing list. Help make it better by adding your suggestions. Please let us know what we should add in the comments section below or tell us on Twitter of Facebook.