Tag Archives: testimonial

Man and woman standing next to each other

New Video Series: Part of the Family

We are excited to bring you a new series of blog posts in 2024. We call them “Part of the Family” because we are featuring families of young Ponto wearers and their experiences not only with Oticon Medical’s bone anchored hearing systems, but also as members of our Oticon Medical extended family of advocates.

Introducing the Bayan Family

The Bayan family includes mom Christine, dad DJ, sister Ava, and Ponto™ 5 SuperPower wearer Sean. Sean underwent a combination of ear reconstruction and our minimally invasive Ponto surgery (MIPS) about a year ago, with the goal of providing him with the best possible access to sound.* The Bayans take every opportunity to offer support to other families who might be considering a BAHS for their child by discussing Sean’s path to better hearing in testimonials and in their community. They have also enjoyed participating in Oticon Medical events where they get to spend time with other families sharing their stories and experiences in a supportive environment.

Open Up Your Child’s World

When your child has a hearing loss, early access to clear, high-quality sound can give them more opportunities to learn and grow—and to engage with all life has to offer. Learn more about our Ponto 5 family of hearing processors and all the ways in which they might benefit your child.

* Ponto surgery is contraindicated for patients under 5 years of age. Not all hearing loss patients are candidates for a bone anchored solution. Patient candidacy and aspects relating to implant
installation are based on individual patient assessment. Outcomes and healing times vary patient to patient. Please consult your hearing care professional. Testimonials represent the opinion of the 
concerned individuals only and may not be the experience of others.

College Student. Videographer. New Ponto 5 SuperPower User.

Lindsey was born with single-sided deafness due to microtia and atresia. Little did she know that answering an ad to record testimonials for Oticon Medical would lead to discovering an effective treatment for her own unilateral hearing loss: the Ponto™ 5 SuperPower bone anchored hearing processor! In this testimonial video — which Lindsey directed herself! — she shares how the unexpected discovery of the Ponto device is supporting her education and career aspirations.

#

I never knew any different when it came to what I could hear versus what my peers and family could hear. My biggest problem has always been with the direction of sound. I usually have to watch people talk to fully understand what they are saying.  When I talk with people, I make sure they are on my left side so I can hear them. Otherwise, the sound gets mixed in with other noise.

When I was 15, I tried my first implant. Although it increased the volume of sounds, I couldn’t tell which direction sound was coming from in very standard locations and situations. It actually made it more overwhelming trying to understand what everyone was saying because it made everything louder without any distinction. I would get headaches after wearing it for a few hours because it was magnetic.

I am currently in college for film production, and I plan to focus on screenwriting and directing.  That being said, I do love videography and cinematography, and getting to begin videography work in a corporate setting has been an amazing opportunity.

I was asked if I wanted to apply for a videography position for Oticon Medical to make testimonials for the Ponto 5 SuperPower. I didn’t tell them I had microtia and atresia until I traveled for the first testimonial. Now I know so many people who also have microtia and atresia or children with microtia and atresia, and I had an amazing summer creating testimonials, improving my craft, and making wonderful connections.

One of the Oticon Medical audiologists offered to let me try the Ponto 5 SuperPower. I could hear distinct sounds coming from both sides, and the volume of things made sense regarding their position from me. It was surreal, yet so natural. It took me a few days to get used to it, but I was delighted with how natural yet powerful everything sounded.

Mother. Student. Advocate. Camilla Juggles It All with Ponto 5 SuperPower

Camilla Gilbert has faced many obstacles in life, including bilateral microtia/atresia with hearing loss and other challenges. Yet nothing has deterred her from helping others and advancing her education. Now she is doing it all with support from her Ponto™ 5 SuperPower bone anchored hearing devices.

#

I had heard about many people with Ponto 5 SuperPower devices and wanted to try them. I heard that it was terrific regarding the sound quality, power, and feedback reduction.

Before I went back to school for my Masters in Social Work (MSW), I went to school to learn about Deaf culture and history, and ASL. What motivated me to return to school was to become a role model for myself, my daughter, and the communities I knew I would serve one day. I want to help and support people who feel like there is no hope in the Deaf/hard of hearing communities and the disabled community. I am currently pursuing my Doctor of Education degree in Educational Leadership.

My experience wearing a Ponto to school as an adult compared to going to a school as a kid without treatment is different. I’m able to understand more clearly. I can not only hear the professors, but participate in dialogue with my classmates.

Wearing the Ponto 5 SuperPower is also helping me achieve my goals as an employee, since I’m very new to my position. I can hear my colleagues whispering in their office with the door closed. Maybe we have thin walls, but before this new Ponto 5 SuperPower, I could not hear the whispering!

With Ponto 5 SP, I can communicate in a social situations, such as at a restaurant, in meetings, and at various appointments. Before, I struggled with understanding what people were saying in social situations. Now I can engage more without listening fatigue.

My hearing journey hasn’t been easy. However, this journey is who I am and will always be. Life is what you make out of it, so we must embrace our differences, weirdness, disabilities, and technology. Without technologies from Oticon Medical, which believes that Sound Matters, I wouldn’t understand hearing health’s quality and importance. If you are at a crossroads in your hearing journey, I suggest you do your research about Ponto 5 SuperPower.

Pastor Ross Feels Like Himself Again With Ponto 5 SuperPower

Ross Wiseman, pastor and avid hiker, struggled to engage with his congregation and enjoy his leisure time after losing his hearing in one ear suddenly. Treating his hearing loss with a Ponto™ bone anchored hearing system was a life-changing experience. Recently, Ross upgraded to the Ponto 5 SuperPower, and in this new testimonial video, shares how much he loves this next-gen technology.

#

The hair cells of my auditory nerves died over a weekend. Friday night, I felt like my ear was stuffed up. Didn’t feel sick at all. Saturday morning I was fine. Was coaching soccer later that day and it happened again. By evening I was fine. Sunday morning, I preached, went home, and took a nap. When I woke up, I couldn’t hear anymore. I thought maybe I was getting a cold or had an ear infection. I called the ENT. When that visit ended, he told me that I was permanently deaf in my left ear. They scheduled a CAT scan to see if I had a tumor. I did not; it was single-sided deafness (SSD) with no explanation.

For over 10 years I lived unaided and was miserable. I couldn’t hear my wife on dates when we would eat out, or when we hiked. She hikes in front of me and when she would speak it was useless to try and communicate. I struggled to enjoy watching tv with my kids or hear at events like ball games. Teaching would make me sick to my stomach as I had to turn my head back and forth to try and hear everyone at the table or in the room). I would often sit with others and just smile because I was lost by the conversations that were going around me. I never could tell what anyone was saying, so it created a disconnect.

When I got my first Ponto, we had our church’s tenth anniversary party. I had so many people come to me who had been with me before I went deaf and say it felt good to have their pastor back. I was out in the open talking to everyone rather than in a corner with one person talking. I was also smiling a lot because I was engaged. I didn’t realize that, during those noisy events, I used to zone out and my face showed it. My Ponto changed everything!

If your audiologist doesn’t use Oticon Medical devices, demand that they reach out to Oticon Medical or find an audiologist who will. I was my doctor’s first Ponto user and implant surgery. Oticon Medical was amazing in sending them a product representative, and when it was time, a surgical rep to explain minimally invasive Ponto surgery (MIPS). Now the majority of their patients who need a bone anchored option go with a Ponto.

 

Professional. Sport Enthusiast. Ponto 5 SuperPower Wearer

Advocate Jay Wiecheta wants you to know how Ponto™ 5 SuperPower supports his busy, active lifestyle. 

Jay Wietecha lost the hearing in his right ear at the end of July 2018 due to a 1.8 cm acoustic neuroma that was surgically removed. Despite his surgeons’ best efforts to leave the hearing nerve intact, it still went out and he was left with single-sided deafness (SSD).

Jay spoke to a treatment coordinator post-op who also happened to have become deaf on one side following removal of an acoustic neuroma. She was a Ponto user and advised Jay that it was his best option and worth looking into. In October of 2018, Jay went through the minimally invasive Ponto surgery (MIPS) and had his first Ponto activated in November of that year.

Jay was inspired by his coordinator’s advocacy to pay it forward and advocate for others who might benefit from bone anchored hearing technology. He shares, “As an active member of the Acoustic Neuroma Association, I have been involved with several support groups over the years in which I openly share my experiences and successes with others who are on the same journey, including my decision to have a bone anchored hearing device. I have developed a close relationship with my local ENT who originally diagnosed my tumor and have shared with him how well my device has improved the quality of life, so he can help his patients become informed of the benefits. I often have open discussions with my own patients about the many benefits to having a Ponto and how well it has served me. Whenever someone asks me about the device, even when I’m out in public, I will stop and chat with even strangers about how great the device is and how it benefits me.”

Recently, Jay decided it was time to upgrade to the new Ponto 5 SuperPower. The following are his thoughts and experiences with a device he says has, “A very vibrant and robust sound quality!”

A User Shares His Thoughts after Upgrading to Ponto 5 SuperPower

Steffen upgraded from the Ponto™ 3 SuperPower to the new Ponto 5 SuperPower to treat his single-sided deafness recently. The following are his thoughts, which he kindly gave us permission to share.

#

I am still very happy with my Ponto SuperPower 5. It continues to remain superior to my old Ponto 3 SP. Notably, the ambient background sound is much more naturally quiet. The Ponto 3 SP had more background noises that made it obvious that I was wearing a hearing device. For the Ponto 5SP, I often have to double-check that it’s even on if it’s quiet in the room or outside. Happily, I’m just confirming that it’s just really quiet in the room or outside vs. a dead battery, etc. On an especially windy day outside, I might switch to “Comfort” mode, but usually it’s not really required.

I’m deaf in my right ear. In a busy, noisy setting, I tend to cock my left ear in the direction of the noise I’m  trying to hear but seem to be hearing just fine when walking with someone on my right side. There’s always room for technology improvement in my mind. I’d even be interested in a hearing system that makes me hear better than someone with two good ears!

I really like utilizing my iPhone® with the Ponto 5 SP for work meetings and phone calls. I do not tend to use the accessory (Oticon ConnectClip™), which is designed to do something similar on my Android™ phone.  When I’m using the iPhone, I can’t even tell if the sound is external or internal!

Cosmetically, I do like that the Ponto 5 SuperPower processor is smaller than the Ponto 3 SP. Not that big of a deal for me, but in the future, I would be interested in a Ponto that is even smaller and less noticeable out in public. If there is a way to develop one that is flush with my head and does not stick out as much, that would be nice as well. Bottom line is that I’m a very happy customer already but am open to even further improvements.

#

Are you ready to upgrade to our latest SuperPower technology? Find out how: Ponto 5 SuperPower Upgrade.

Initial Thoughts on Ponto 5 SuperPower: Great Power and Processing

We recently spoke to a long-time Ponto™ wearer with single-sided deafness (SSD) who tried out our new Ponto 5 SuperPower. They kindly gave us permission to share their reaction, because they want to encourage others with similar hearing conditions to treat their hearing loss effectively.

#

Hey there! I have had single-sided deafness for more than 20 years. I’ve struggled to hear voices on my “deaf” side and either had to ask for repetition or ask the person to move to my “good” side. Also, hearing in noisy environments is very difficult and drains me of my energy. It was a big decision to get implanted with a bone anchored hearing system (BAHS) and I inevitably waited longer than I should have to get the surgery. Overall, it was a simple procedure.

I have been wearing Ponto since the second-generation Ponto Plus was available. I have tried other products with mixed results due to poor sound quality and reliability. Next, I transitioned to a Ponto 3 SuperPower, and was really impressed with the improvement in sound quality with a more powerful device.

When Ponto 4 came out, new sound processing and Bluetooth® technologies were available with direct streaming to the device. While Ponto 4 was not a power device, these improvements were enough for me to upgrade and the sound quality from the Oticon OpenSound Navigator™ seemed to make up for the lack of overall power. There were some issues however, as the sound felt slightly flat and the streaming was a little too soft, especially when there was any sort of background noise.

I have been using the Ponto 5 Superpower since it became available, and it is so great! I now have the power and processing that makes sounds feel incredibly natural. I can tell that there is a calmness and relaxation in my body and mind when I am wearing the Ponto 5 Superpower. Hearing this naturally makes a really big difference day to day and there is a depth to the sound that I have not experienced with any previous bone conduction device.

Combine this with the amazing streaming volume, which to me sounds louder and not distorted, and I would say that this is certainly a step forward compared to any of my previous devices. I would encourage anyone wearing a BAHS to try the Ponto 5 Superpower and experience these things for themselves. It was well worth my time and effort to go through this process.

#

Are you ready to upgrade to the Ponto 5 SuperPower? You can try it out before you decide! Please visit the Upgrade Your Ponto page on our website for details.

Advocate Sarah Shares Her Experience as a College Student with Hearing Loss

Sarah Sabal is a longtime Oticon Medical hearing advocate and currently a summer intern with Oticon Medical. In this blog, she shares her experiences growing up with hearing loss and how she has benefited from wearing bilateral Ponto devices, particularly when it comes to her education.

#

Hello everyone! My name is Sarah Sabal, and I am a college student attending Rochester Institute of Technology, double-majoring in Marketing and Chinese Language and Culture (Mandarin) with a minor in International Business. I will be graduating in the spring of 2024.

Having been born deaf due to microtia and atresia and after spending the first seven years of my life in an orphanage in China, I am no stranger to adversity. I learned early on how to overcome challenges and never let my disability define me. Instead, it serves as a reminder that I need to work extra hard turning every challenge into an opportunity to succeed. I am a longtime Oticon Medical Ponto™ user and an advocate who wears a Ponto 5 Mini, which has changed my life. It has helped me to experience the full soundscape, while learning Chinese, and communicate more easily with my co-workers, teachers, and friends, and better advocate for myself and other people with hearing loss.

Motivated despite challenges from an early age

Back in the orphanage in China, I had no family, education, or hope. When a family in the United States chose to adopt me, I knew my life was about to change and that I would have to work extra hard to make up for the lost time.

As an adoptee from China, I always wanted to learn the Chinese language. When I came to America at seven, I was deaf and could speak only a small amount of the Sichuan dialect. My greatest personal challenge has been overcoming my deafness and proving that I can achieve my goals through hard work, determination, and never making excuses.

After I had minimally invasive Ponto surgery (MIPS) and got my first Ponto bone conduction hearing devices, I remember hearing the birds for the very first time. New to hearing and speaking, I worked tirelessly to ensure I was always prepared for class. I focused on becoming proficient in English. Over the years, I also taught myself Mandarin so that I could communicate with the exchange students my family hosted from China. I became regularly active in my high school and served as an advocate for the Deaf and hard of hearing (HoH) community. I also participated in various extracurricular activities. I achieved a 4.2 GPA, was a member of the National Honor Society and National Art Honor Society, played the oboe in my high school band, and ran varsity track and cross-country.

My interest in the Chinese language prompted me to pursue an undergraduate degree at RIT. This distinctive degree program pairs a proficiency in the Chinese language and culture with a technical or professional discipline, such as engineering, business, and health sciences. I take every opportunity both in and outside the classroom to immerse myself in language, culture, and traditions.

I was awarded the Critical Language Scholarship (CLS) in 2021 through the Department of State, where I studied Mandarin this past summer at the National Cheng Kung University (NCKU) in Taiwan. Due to Covid-19 restrictions, the program was taught virtually but allowed me the opportunity to travel to South Korea independently for an immersive experience and to learn about another culture. I was selected as a 2021 Boren Scholar to study Mandarin in Taiwan this upcoming fall 2022 for a semester. I have been accepted into National Cheng Kung University (NCKU) to advance my Chinese proficiency and study Business in Chinese.

Since getting my Ponto 5 Mini, I have had the opportunity to study abroad in a different environment constantly using Chinese, which is a difficult language to learn. It is a very tonal language that involves hearing different pitches and attention to detailed minor sound changes.

Using Ponto 5 Mini in a classroom environment

My college class schedule gives me the flexibility to study, work part-time, socialize, and rest in my free time. My class range in size from 14 to 200 students. Learning in a large setting with many students and one professor can make it challenging to hear because it is often noisy. During lecture sessions, I take advantage of RIT’s services through the National Technical Institute for the Deaf (NTID) program, allowing me to have captioning, note-taking, and extended test time. In addition, I use Oticon Medical’s advanced wireless technology, EduMic™, which allows me to hear my professor’s voice directly through my Ponto 5 Mini.

After classes, I usually go to a study room on campus to do my work online. When I have Zoom meetings or video lectures, I use the ConnectClip™ that automatically syncs through Bluetooth® to my laptop. I love using my ConnectClip because it provides a clear, crisp sound that goes directly into my Ponto without an interim accessory and does not have to disturb anyone else in a quiet study room. I am grateful for Oticon Medical and RIT’s services for helping Deaf or hard of hearing students, which have allowed me to reach my full potential and succeed in all my classes.

Social life made easier with Ponto

During my free time, I often get together with my friends, which is the best part of my college life experience. We usually go out for dinner and go on adventures creating quality memories that I will cherish for the rest of my life. When I am with my friends, in clubs, or attending any social events, struggling to communicate, or straining to hear what they say in a loud, crowded environment has not been an issue. My Ponto 5 Mini has a built-in setting that automatically reduces or softens background noise to help me listen to the person talking directly to me. The OpenSound Navigator™ feature creates a 360 degrees soundscape, allowing me to hear sounds coming from all around me.

Facing life’s challenges

In life, there will always be challenges trying to knock you down. Although I am doing very well at RIT with my Ponto 5 Mini processors, there have been some personal and technical challenges. A few ignorant people who don’t understand hearing loss have silently judged me for needing an American Sign Language (ASL) interpreter, talking slowly, or they assume that I might be stupid. To combat these personal challenges, I try not to let them affect me and continue to show everyone who I am and that I’m not afraid that I am different. Often, these ignorant people lack education and understanding that hearing loss does not affect an individual’s other capabilities, or they are just narrow-minded and unwilling to accept differences.

I have also had some technical challenges, such as needing more batteries or a check-up for my Ponto 5 processors to ensure they continue functioning normally. The most fortunate part of RIT is that they have  a free, on-campus audiology center where I can make an appointment for any hearing-related issues. I am grateful to my school offers this, as most universities do not.

Becoming a hearing advocate for myself and others

Before coming to RIT, I used to be self-conscious because I didn’t want to stand out from my hearing peers. I used to wear my hair over my devices and not let others see that I was wearing my Ponto processors. That all changed when I realized coming into college, most people were very welcoming and accepting of diversity and part of an inclusive community. At RIT, we have approximately 12,000 students with hearing loss creating a unique, mixed community between hearing and Deaf/HoH students interacting together. I am not afraid to explain to other students what my processor are and how they help me hear. Most of my friends, classmates, professors, and other faculty staff find it very interesting and are amazed to learn how I hear through vibration with my Ponto 5 Mini yet can live the life I want as a college student. I am proud of my identity, where I come from, and how I got to RIT, accomplishing all my endeavors.

I have always overcome any adversity that blocked my path to success. When challenges arise, I self-advocate by communicating with others to help them understand my situation and ask for the help I need instead of struggling. It took me a long time to learn to advocate for myself because, growing up from elementary to early high school, my mother always fought for me to ensure I had the right resources. But now, as a college student, I stand my ground to ensure I don’t get taken advantage of due to my hearing loss. My mother is still my biggest supporter and is proud of me for overcoming my hardships though!

I am now excelling in college with a 3.58 GPA and currently participate in different clubs and sports activities. I was part of the RIT NCAA Division III Women’s varsity cross-country and track; I am a member of Asian Cultural Society and Society for Asian Scientists and Engineers (SASE). During my college years, I have taken three part-time on-campus jobs as a Chinese note-taker for Deaf or HoH students, a virtual teacher’s assistant in Chinese cultural research, and a Chinese tutor. I believe everyone has a voice and that their values matter despite their hearing loss or other challenges, and that like me, everyone deserves an equal chance of success.

How Advocacy Led Emma Kate’s Family to the Right Hearing Loss Treatment

Longtime Oticon Medical advocates Georgene and Lucy Brown befriended Liz and Emma Kate Greene, which led to Emma Kate getting a Ponto™ bone anchored hearing system (BAHS) to treat her single-sided deafness (SSD). Now Liz shares her family’s journey toward finding the right solution and the vital roles Georgene and Lucy played in making their decision.

Emma Kate has single-sided deafness due to conductive hearing loss. This is secondary to otosclerosis, which was first diagnosed in kindergarten, but we suspect occurred in 4K as we had quite a bit of difficulty that year following directions. Her teachers actually thought she was autistic because she had difficulty interacting at school, but we had no difficulty at home. We suspect this was because there was less background noise and because her dad and I both have strong (loud) voices.  

She initially used a behind-the-ear regular hearing aid. She told us that this did not improve her hearing almost at all and we had a lot of difficulty getting her to wear the device. She also had difficulty being active as her device would frequently fall off and get lost.

Discovering bone conduction as a treatment option

We were first introduced to the idea of a bone anchored hearing device by our ENT when Emma Kate was 10 but he told us this wouldn’t be an option until she was older for implant. He did not offer the option of wearing a device on a softband. He also dealt exclusively with another manufacturer and therefore Ponto was not offered as an option. Once we were introduced to the idea of bone anchored devices, I did a lot of research into available devices along with the pros and cons of each, which lead us to a new ENT who was able to work with Oticon Medical devices.

As part of my research, I joined several social media groups geared towards bone anchored devices for both adults and children. In asking questions in these groups I was frequently referred to Georgene Brown, as our daughters are close in age and both active. She was incredibly friendly and informative when I reached out and has always been willing to spend time discussing her vast knowledge regarding bone anchored devices.

I think that all preteens, especially preteen girls, want to feel like they fit in. Any difference is upsetting, particularly when you feel that you’re the only one dealing with an issue. Emma Kate’s friendship with Lucy Brown has helped her feel that someone else understands the challenges that she has from being hearing impaired and also the fears that come with requiring surgery, how to fit in at school, etc. It has been incredibly beneficial to Emma Kate to be able to talk to someone who has lived through these experiences and is thriving despite hearing loss.

The next step: minimally invasive implantation surgery

Emma Kate’s abutment placement was incredibly smooth. We had a same-day procedure. She recovered from anesthesia without difficulty and was playing her guitar about two hours after we left the hospital. We had no difficulty with healing or infections. We were able to activate her Ponto about six weeks after her procedure. The most difficult part was not using her Ponto during that time at school.

Emma Kate says that since having her abutment implanted, she can hear better and that it is much more comfortable to wear her Ponto as opposed to when she was wearing the softband.* She also states that she was embarrassed for people to see the softband but feels that her Ponto is now much more discreet. She is able to be active without her Ponto moving but states that her softband would slip out of place sometimes when moving between classes at school.

The benefits of Ponto 5 Mini

Now, having the new Ponto 5 Mini makes Emma Kate’s life even easier. We first noticed an improvement when Emma Kate began wearing a Ponto on a softband However, the benefits have increased since her MIPS procedure. At home, she is able to engage more at dinner or in conversations.

At school, Emma Kate uses an EduMic™ to stream her teachers’ voices directly to her Ponto. Particularly in middle school where she has multiple teachers, some of whom are very soft-spoken or teach from the back of the room, this has been incredibly helpful. Again, this is particularly helpful during the pandemic, as many teachers are wearing masks. We have seen an improvement in her grades from consistent B’s and C’s to A’s and B’s.

She also has found significant improvement in everyday activities. She loves to play guitar and listen to music. Her Ponto has significantly improved her ability to follow music while playing her guitar and to watch TV or listen to music without the whole house hearing what she’s watching. She loves the ability to stream music directly to her Ponto, especially on road trips.

Emma Kate would say her greatest improvement is socially. She is much more confident engaging in conversations since she is not frequently having to ask her friends to repeat themselves. And this is particularly helpful in settings with background noise, such as restaurants, parties, and the cafeteria at school.

The Ponto 5 Mini’s small size, as well as the lack of feedback (due to the OpenSound Optimizer™ feature) when worn under her thick, long hair were both critical in our decision-making when comparing devices initially. She also uses the Bluetooth® capability almost daily. We have not yet used a remote appointment (via the RemoteCare™ feature) with our audiologist but have discussed that this is possible in the future. 

What parents considering a BAHS for their child should know

I want someone considering getting a bone anchored hearing device to know that there are options. Frequently, only one popular brand’s products are presented but there are other companies, such as Oticon Medical, that have incredible products as well as unparalleled support. When I initially reached out to Oticon Medical to get information prior to deciding to pursue a Ponto, I was immediately connected with a local representative who was present at Emma Kate‘s activation appointment and has been invaluable throughout this process. She is constantly willing to help me adjust settings as well as obtain necessities, such as an extra case or support for school.

I would also want them to know that there may be insurance challenges. However, our ENT and Oticon Medical have been incredibly helpful in working through these.

Lastly, and perhaps most importantly, I want them to know that they are not alone. There are multiple support groups available online through social media that can help connect to other parents as well as young adult and adult patients who are using bone anchored hearing devices in their everyday lives. These individuals are always more than willing and gracious to answer questions, provide experiences, and to just listen to the frustrations and fears that unavoidably come with having a child with hearing loss. We have found this community, particularly Georgene and her family, to be our biggest cheerleaders through this process. They have helped alleviate Emma Kate’s fears, as well as our concerns, while having our daughter go through a surgical procedure, healing, and ultimately making life-changing decisions. We are so thankful we found Oticon Medical because even in the short time that we have been using Emma Kate’s Ponto we have seen vast benefits.

Ready to try a Ponto bone anchored hearing system? Find a clinic near you!

* NOTE: Implantation is contraindicated for children below the age of 5 years.

A Nurse’s Journey to Better Hearing with Ponto 5 Mini

NICU nurse Christina shares her experience recovering from acoustic neuroma and finding the right treatment for her resulting single-sided deafness.

After my first medical mission trip to Guatemala in 2020, I came back to the states with a global pandemic starting and a constellation of symptoms that seemed to be getting worse that my doctor could not explain. It would not be until January of 2021 that I would learn a small brain tumor was responsible for my debilitating symptoms.

I was terrified and worried for my family. I am a single mom of two small children. My kids depend on me, and I am the sole income for my household. My job as a neonatal intensive care unit (NICU) nurse requires full use of all my senses and this tumor was going to take my hearing, balance, and possibly more. I was worried about what my life would look like, not to mention the possibility of losing my life to the tumor itself.

In May of 2021, I flew from Atlanta, Georgia to California to have surgery with the specialists at University of California San Diego to remove the vestibular schwannoma (acoustic neuroma) that was growing on my cranial nerve. My recovery was hard, and unfortunately, they were not able to save my hearing. I was now completely deaf in one ear. I was heartbroken. I couldn’t hear in loud places. I had a strange feeling that there was just a huge black hole next to my deaf side. The doctors call it a head shadow, but it was more like a black hole to me.

Challenges of finding the right single-sided deafness treatment

Once I had physically recovered from surgery, my doctor back home wanted me to get a hearing device to use, and get used to, before returning to my work as a nurse. I initially got a loaner BiCROS hearing aid to try out from the hospital. Slowly, the black hole disappeared, but I was still concerned. Having to don so much gear to protect us and our patients from the Covid-19 virus, I worried my hearing aids would get in the way. I have to take masks on and off and put on sterile attire to enter surgical suites and found I would often get my hearing aids caught in my hair or in the straps of masks. I also had to remove one to be able to use my stethoscope. I knew there had to be something better.

My work in the NICU involves caring for the most vulnerable of all patients. Some weigh only 600g! A mistake can be devastating. I need to be able to hear the orders from providers, the heartbeat and lung sounds of my patients, and communicate with parents efficiently.

One of the first things we do when we get to work is receive a report from another nurse, which can be very stressful because of all the normal noises around us and the sound of everyone else giving reports at the same time. I also attend high-risk deliveries and codes, which are highly stressful and do not allow for any mistakes to be made. Communication needs to be clear and precise. Meanwhile, I still had difficulty hearing at work with my BiCROS—the amount of noise from alarms, vents, oxygen tanks, etc. would get scrambled into what I was trying to hear.

I had heard about bone anchored devices but was hesitant to go into surgery again, so I worked with the BiCROS system for three months. After doing some research, I decided the bone anchored hearing system (BAHS) would be a better choice for me and had heard many good things about the new Oticon Medical Ponto™ device, the Ponto 5 Mini. It was the newest device available, and its small size led me to believe it would work better for my needs. I also really liked the idea of putting it on in the morning and just not having to think about it for the rest of the day.

I scheduled my abutment placement. I did have concerns about my sensitive skin and having a reaction, but the Oticon Medical representatives were wonderful and answered all my questions and concerns. The placement itself was super easy, and I recovered really quickly. I even ran my first half-marathon two weeks after the placement of my abutment!

A new world of sound with Ponto 5 Mini

Getting my processor was amazing. I could hear so much more and clearer, but sound was strange at first—it was tinny, and difficult to sort out sounds. I thought maybe I had made a mistake and I got really down. Sometimes I would just turn my device off, but I had read somewhere that you need to constantly wear your device so that your brain can integrate the new sounds. So I used the theory of practice makes perfect and just continued to provide opportunities for my brain to sort out the sounds I was hearing.

I like the fact that with Bluetooth® compatibility, I can just connect to my devices and not have to juggle with a hearing aid and earbuds. They also are making stethoscopes that can connect directly via Bluetooth to my Ponto. I actually am able to listen better to my patients than my hearing counterparts at times.

I have to put surgical caps on to enter surgical suites, and the small size helps make this process a lot easier. I use the OpenSound Navigator™ feature a lot in the loud NICU especially when I am working the night shift. When I get tired, it is harder to sort out sounds, and this really helps during those times.

My hair nicely covers the processor so no one can see it. It’s not that I necessarily want to hide it, I just don’t want to give anyone any reason to question my abilities. On the other hand, if I want to share, I am able to, and sometimes showing a patient that you have a disability like they do and showing it as a super-power or special ability gives them an opportunity to see themselves in a different light.

I was really surprised how little I have to worry about feedback thanks to the OpenSound Optimizer.™ I was told that it would be a big issue, especially while wearing hats, but as long as the hat or surgical cap is loose-fitting, I really don’t have any problems.

It took almost two months, but I remember one day actually forgetting that I had my Ponto 5 Mini on and that I was deaf on one side. Something had clicked. Earlier, I had told the organizer of the medical mission trips that I would not be able to go this year because I was not sure I could help anyone due to my hearing loss. After that day though, I called him up and said, “Sign me up, I’m ready.” I have now completed my second medical mission trip to Guatemala personally helping hundreds of patients—none of whom had a clue that I once struggled with hearing.

I am the cool bionic mom to my kids! They are 10 and 12 and like to talk to their mom at the same time especially when they are excited about something. My Ponto 5 Mini helps me sort out their voices and hear what they are saying even when they talk over each other.

I want someone deciding whether to get a Ponto bone anchored hearing system to know that it takes time to adjust to your device. It’s not a magic button. Like anything, it takes practice and patience. The brain is amazing, and we are fortunate to have this technology. Just don’t give up!

#

This video was taken eight months post-craniotomy and two months post-BAHS implantation. My 10-year-old wanted to rock climb for his birthday, so of course I had to show them all up. I don’t wear the safety connection device, mostly because I don’t want to draw attention to myself. In the beginning of the video you can see where the rope hit the Ponto and it fell (not sure how high that is) a long, long way down. You can hear my kid’s Dad saying, “Something fell off” and my mom saying, “It’s her processor.”

Christina goes rock climbing with Ponto 5 Mini.

 Thank God there were pads underneath! I got down and clipped my processor back on and it works fine. Also, I’m an old lady so don’t judge my climbing skills (hey, I went higher than all the 10-year-olds!)

Ready to try a Ponto 5 Mini? Find a clinic near you!